MANDY: I have heard mentions, people saying about the condition being like a vampire and
the teeth. I remember, it were funny really, we went trick or treating and the boys already
had their teeth y’know and their friends had to guy and buy plastic ones to put in, so
they sounded like uh, looked like vampires. And the white skin as well, they’re very fair
skinned, so, it’s very similar. 00:31
SIMON: People do say we look like vampires sometimes because we have pale skin and we
have our front teeth. I’m not really fussed, I think it’s quite cool to be like a vampire. 00:48
SIMON: HED stands for Hypohidrotic Ectodermal Dysplasia, and basically it means you can’t
sweat, and are pale and and fine hair. And you don’t have any teeth. 01:01
SIMON: If we’re in sunshine we wear like, we wear our hats, and we put on sun cream.
It affects me, in ways, that I can’t go out in heat in the summer, and it’s hard when
we go on holiday because we have to go in like, winter time. And at supper we have to
have soft food because we don’t have any teeth to chew them. 01:24
MANDY: And I said, I don’t think the kids are any different to any other kids, they
obviously look different to other people but they’re still kids, they’re still boys and
they’re still…up to no good.