Bullied Because My Skin Grows Too Fast | BORN DIFFERENT

Bullied Because My Skin Grows Too Fast | BORN DIFFERENT

MUI THOMAS: Even though it’s difficult, sometimes living with ichthyosis and going out, I can always count on the support of a lot of people around me. Acceptance is such a big thing, and for me to you know, not to have to explain myself all the time. And it is nice just to hang out with people and just be normal, have fun. MUI THOMAS: I get cold a lot more quickly and I get hot a lot more quickly. I don’t sweat, my sweat glands are not as well developed as ordinary people. I have to be really careful about being in the sun for too long, otherwise I could get really high temperatures at night. I normally try to stay as hydrated as I possibly can. My skin condition, Harlequin Ichthyosis is a very rare genetic skin disorder, it only affects a small number of people in the world and I am one of the oldest survivors with it at the moment. MUI THOMAS:  I always carry cream in my bag because it’s important for me to remain moisturised. So, you know, whenever I feel dry or every so often, I just take the tub out and I will just put some cream on and then I am good to go. When I was born, my birth parents signed me off and I was in a hospital and my parents met me as volunteers when I was one and a half years old. TINA THOMAS: She just basically walked into our lives, she came into the room. I just could see this spirit, I could see she wanted to have fun, she wanted to get on with it. And well I just couldn’t walk away and say well you don’t deserve a chance and well that’s where it started. ROG THOMAS: Having a visible difference, the psychological challenges of that have a huge role to play. MUI THOMAS: One of my biggest challenges is going out, sometimes people will often stare and point at me. It’s really horrible because I just want to go out and live my life and be normal, but it doesn’t work when people shout and scream at me. My experiences in high school were really difficult: fitting in and also cyber bullying. I think for me my biggest struggle was not having really any friends. I think that the cyber bullying broke me, and I wanted to actually kill myself. I wrote a suicide note and I gave it to my mom. I just thought nobody wanted me around. TINA THOMAS: I felt absolutely devastated. I thought gosh, after all Mui had gone through, after all she had survived and we were such a unit. It was so devastating to see that Mui now, the spirit was completely broken and she wanted to give up and it took a long time to build her up that she felt halfway good again to go out there and face people. She always wants to get on with life; she wants to get out there. She’s a survivor, not just in the way of health wise, but she’s also a survivor getting up there and going on with life. MUI THOMAS: Now growing up as an adult, I definitely have one or two close friends and you know we get on really well. And they accept me for who I am and it is nice just to hang out with people and just be normal, have fun. My parents and I set up a Facebook page called ‘The Girl Behind the Face’. We wanted to raise awareness for people with visible differences and people who struggle in society. We’ve been going with it now since 2015 and hopefully as time goes on, we’ll be able to get a book out. MUI THOMAS: I spoke out about it and so many people around the world reached out with support and so it made things a lot easier to deal with. TINA THOMAS:  Discrimination with regard to a visible difference is huge but it’s rarely discussed or highlighted, especially in the media. And so we hope that by having a platform that we will be able to raise awareness about the challenges somebody faces with living with a visible difference, but also raising a child with a visible difference. Parents are sometimes forgotten in terms of what they have to go through. MUI THOMAS:  So, we are going over from one side of Hong Kong to the other side of Hong Kong. We are going to be at the Hong Kong football club. I am on my way to the under twelve finals, I am a little bit nervous. I’m the only referee in the world with Harlequin Ichthyosis. It makes me feel kind of good and it kind of makes me feel like I can empower others. I am here to show others that you can do whatever you want, you know, as long as you have the mind for it. PETER HUDSON: Today we are at the mini rugby festival at the Hong-Kong football club, the final one for the season. You know, she is progressing well, and we are really proud to have her here with us and it’s just great, great to work with them. PETER HUDSON: Refereeing is not for everybody and you know, to have the courage to do that with, with all the other challenges is certainly inspirational, yeah. ROG THOMAS:  She doesn’t want to be held back by having a disorder. Just because you look different doesn’t mean you are a lesser person. MUI THOMAS: My hopes for the future is for me to, you know, just become a stronger person to hopefully reach a wider audience with what I do, you know, with advocacy and just simply living my daily life. So, I think for me it’s just, you know, looking to the future. MUI THOMAS:  Meet people, make connections, have a really strong support network and also just be open. And if you are struggling it’s okay to speak out and smile, smiling helps a lot.

100 comments / Add your comment below

  1. Good on her I thought what but it's life that lives longer people need each other like and comment down below if you agree

  2. People shouldn't judge to quickly this girl is living her life having fun and very brave courageous and beauty is inside her

  3. I don't really understand why guys bullying if you are different, she seems like nice person ❤️

  4. OMG she is soooo pretty those bully’s should get their eyes checked she is way more prettier and beautiful than me I’m ugly but she is beautiful amazing and an inspiration to every person who gets bullied she is the best and she brings happiness xxxx

  5. Her parents have a different accent than herself… don't children normally take her parents accent?

  6. Amazing person ! Imagine if everyone was as strong and determined and positive….without having to deal with such challenges….this world would surely be a better place! You go girl!

  7. You know, she has a great personality and it doesn’t matter how she looks she’s amazing she’s lived longer than anybody with that disorder, and she doesn’t care about the hate anymore and that really is amazing! And I hope she can live a full life :))) because she’s beautiful just the way she is ❤️❤️???????????? :))

  8. And mui ur beautiful dont let ppl control u if they say ur ugly its not true there just jelous if the say anything bad say u might think im ugly but it my opinion that im pretty or u can say wat u want its ur life enjoy it?????

  9. I just wish nobody would bully like I understand people look like that but they are still people

  10. Why does she have her profiles like Instagram on public, when she could leave it on private do that only your friends can comment and like, she can decide who sees her photos and she will know who is bullying her because she would only accept people to follow her that she knows

  11. The people who went out of their way to write a hate comment on her post are really really disgusting and should know better

  12. wow there was a time when people w/ this disorder didn't live long – i am so happy she's able to live a relatively normal life!

  13. People are so mean! Like wow…I watch these videos to be proud of these people that are different! I KNOW people need to be nicer and take in people that are different and unique there different in there own way and you should be Proud!

  14. I wish you a happy, complete life full of love and support. The same to your equally awesome parents!

  15. I would never bully her and I wish her no harm but if I'm being honest she scares me, and I'm sorry I feel that way but I couldn't stay in the same room as her, like it would make my insides churn.

  16. Please dont ever put this on my snap chat stories ever again. Some people actually enjoy eating food.

  17. She is a normal human being only with more skin. The pro about having more skin is probably not hurting when you have a cut. If the bullies get cut they’ll probably cry.

  18. 2:51 If you pause it and read it, then you will definitely cry? poor her she seems like a really nice and Happy person ?

    GOD BLESS HER Heart ?

  19. I this odd things are adorable and…OMG SHE IS SOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOO adorable as a baby

  20. Her skin may be a bit different, but her gorgeous smile and soul is a shining light in the world, bless her I hope she gets everything she's ever wanted ??

  21. I bet the people that bully her are ugly!! She is so pretty!! God, please help this amazing girl and make are not be hated!!???

  22. Amazing how others have plastic surgery to enhance their looks but ruin them. This Lady is born with this skin problem and is cute and a fighter.

  23. I Absolutely love this. So beautiful it melts my heart. Thank you so much for sharing with us.

  24. Doesn't surprise me that there's people in this world, so cold and uncompassionate it's disgusting. These unfortunate people don't have a choice in the matter and thus are forced to play the hand they're delt and it takes so much courage and strength to not only live the best life they can but also be willing to be open and share their conditions and spread awareness and education to those who don't understand.

    The bullies should live with a condition like this for one day and see and feel what it's like and maybe they'll aquire a shred of human decency and compassion

  25. Such a sweetheart, I really have trouble believing how cruel this world can be. It is sad to know there are people that can bully someone whose clearly struggling and just push her down to feel less than everyone. She has such a beautiful and bright personality and I admire her for being such an inspiration

  26. She is a living doll! What a sweetheart….May God Bless you with a long lasting life without any suffering. Bravo Kiddo ?? keep doing what you are doing and ignore the haters(losers in life!!?) ????❤️????

  27. All the bullies and cyber bullies have insecurities. They actually want the life she has and are jealous. They don't like themselves so they have to bully others to "TRY" and feel better! Girl, keep doing what your doing! Your beautiful inside and out! ?❤

  28. dont worry abt wat ppl say ur as good as some of us even better keep living a fantastic awsome life and btw u inspired me so much through out these 7 minutes

  29. Everyone is beautiful in there own way if I seen her in person in my head I would say whats wrong with her skin won't say it aloud but In my mind I think who ever bullying her stop your not better than her or the next person we all have to put on our shoes one by one so dont judge people

  30. To be honest she might not be the most beautiful but at least good hearted! Hopefully she has a good life with many friends! 🙂

  31. i don’t understand who would post such messed up comments like ‘waste of a life’ ?? and why. I can be nasty online too but never on a personal level like this, that’s fked, there’s a point where your human decency comes into question

  32. I'm so sorry, anyone watching this for inspiration. Know that bullys are hurt people.nothing more true than Hurt people hurt people I've been 1. Pray for us and Keep Inspiring ..you make a difference. (People do change I'm living proof) SMILE✌❤????

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