How I was Diagnosed with Asperger’s | WAAW17 | invisible i

How I was Diagnosed with Asperger’s | WAAW17 | invisible i


Welcome to the world of being an Aspie – you
buy some hoop earrings thinking that they might look ‘cool’ but instead of it being
a question of ‘Hey, do I like the look of these?’ it’s more of questions of ‘Will they
annoy the crap out of my body?!’ Hey everyone, it’s Katy and welcome back to
my channel. Welcome to World Autism Awareness Week 2017! This is a week where we spread
awareness. It runs from the 27th March – which was yesterday – till the 2nd April – which
is on Sunday. So for this week I thought I would celebrate by doing a video a day – phew
challenge accepted! So if you haven’t already seen the video that I very crazily and surprisingly
uploaded yesterday then I will link it up here and down below. Very different one, pushed
me out of my comfort! Go and check it out, I am really proud of it but it’s very, very
different. So today I thought I would kick-start the
conversation by talking a little bit about how I was diagnosed with Asperger’s Syndrome
when I was 18 years old. This is a question that so many of you ask me and I don’t think
I’ve really gone into detail about how I was diagnosed. To be honest, it’s not really an
exciting story so I haven’t filmed this video beforehand because I think people expect it
to be this big, exciting, motivational kind of story and it’s really, really not! But
you guys asked me about it so I thought it was about time that I sat down and chatted
about it to you guys. I never pursued a diagnosis of Asperger’s
Syndrome, it was never something that I really knew a lot about. I’d only heard of it once
before and that was from Heather on America’s Next Top Model who had Asperger’s Syndrome
and even then I didn’t really correlate the two. I didn’t really realise that it was an
Autistic Spectrum Disorder or anything like that. So I had never really heard of Asperger’s,
I’d heard of Autism but didn’t even think of myself as being Autistic. It was never
something that I had looked up and then thought ‘ooh I need to get this checked out. I need
to get a diagnosis.’ So previously when I’ve explained that I literally
did just walk into a general appointment at the Child and Adolescent Mental Health Service
and we started to approach a diagnosis of Asperger’s Syndrome, people assumed that it
was an off-the-bat, one-off conversation. It really wasn’t! I had been under this team
for nearly 3 years at this point so they had seen me all the way through my mental health
journey and all the way through college. So it wasn’t just like I met someone and they
were like ‘Hey you’re Autistic’ and I didn’t have to go through the motions of being diagnosed
with lots of other things and trying to work out what was up with my brain! It wasn’t an
off-the-bat thing, it seemed like that at the time but I had been under this team from
such a long time that they had enough time and had seen me enough times to get a full
assessment of it. So like many, many females on the spectrum,
I was actually diagnosed after experiencing a lot of Mental Health problems. If you haven’t
seen my video about being an Autistic Female and the differences in diagnosis and symptoms
compared to males then I will link it up here and down below for you to check out. But I
mentioned in that video that many females do get diagnosed after experiencing a shed
tonne of Mental Health problems and that is exactly how my experience went. I had been
under the Child and Adolescent Mental Health Service from the age of 16 onwards and at
this point in time – for the last 2 and a half years – I had been experiencing panic
attacks, Anxiety, Depression, OCD, I had been diagnosed with Tourette’s Syndrome as well.
It was just a big ball of mess really. So at the end of January 2015, I just walked
in to one of my appointments – it was kind of like a follow-up appointment. I hadn’t
been seen for a couple of weeks and I was being seen very, very regularly at this point.
I was probably being seen every week maybe twice a week so this was probably the first
time where I had had a bit of a break. I was approaching being discharged from CAMHS – from
the Child and Adolescent Mental Health Service. Because it’s for children and adolescents,
you’re discharged before your 18th Birthday But I was at a different circumstance because
I had just started on very, very strong anti-psychotic drugs which CAMHS were monitoring. So I started
those just before I turned 18 and then they had to monitor me then – they couldn’t just
send me off to get lost in the system because I was on very, very strong drugs. So they
kept me for much longer than they do with anyone else. I was actually kept well into
being 18. At this point in time, we were discussing
getting referred to the Adult Mental Health Service – if you are about to turn 18 and
you need to be discharged from the Child and Adolescent Mental Health Service, they automatically
refer you to the Adult Mental Health Service so you can pick up your treatment with a team
which is much more qualified for your age and your circumstances. So this follow-up appointment that I was going
to at the end of January was mainly discussing my discharge plan and talking about where
I was going to go. At this point in time I knew that I was going to get sent to the Adult
Mental Health Service, it was just something that is well known with CAMHS, you just get
moved tothe Adult Mental Health Service – that’s just what they do so that is what I was expecting. But in this appointment, we started to discuss
the possibility that I might have an Autistic Spectrum Disorder. They way that my consultant
described this is something that I have never actually explained to any of you guys out
there but it’s something that I thought would be important. I am going to try and explain
this in the best way possible – I might include some little diagrams to help aid the explaining! But basically what he did was he sat me down
and drew 4 bubbles – so almost like a Venn Diagram – 2 at the top, 2 at the bottom. These
bubbles represented OCD, Tourette’s, Autism and Asperger’s and the last one was ADHD.
He explained to me that this is like a map. All of these conditions overlap and more frequently
they come with each other and you map out where you are at a certain time. So for me,
when I first started my treatment back in 2013 when I was experiencing a lot of Anxiety,
a lot of OCD and Tourette’s, I was more in the bubbles of OCD and Tourette’s and less
in ADHD and Autism. But then over time, I moved away from OCD and just solely in Tourette’s
– that was my main symptoms and those were the main things that I was really suffering
with. Then he said ‘we think you’ve moved towards the middle somewhere now where you
are experiencing OCD, Tourette’s and actually symptoms of an Autistic Spectrum Disorder.’
ADHD is something that I don’t think of myself as having, I’ve never been ‘mapped’ into the
ADHD bubble. I don’t think of myself as having ADHD. So in that appointment, my consultant told
me to go away from it, read about Asperger’s Syndrome, see if anything makes sense and
see if I relate to it in anyway and then come back next week. So that’s what I did! After
the appointment, I sat in my car with my mum and this was on a school day so I had just
been told that I could potentially be Autistic and I had to then go and I think I had to
sit an exam this day. I’m pretty sure I had a mock A-Level exam which I had to sit so
it was a really crazy, stressful day! So I went back, I researched a lot about it
– my consultant had recommended a book my Tony Atwood who is just the most amazing writer
and professional when it comes to Asperger’s Syndrome in girls in particular. He wrote
an amazing book about Asperger’s in girls and it just spoke to me and my parents were
just in disbelief that this could have a name! All of it just made sense. So we went back the next week to the Child
and Adolescent Mental Health Service and sat down with my consultant again and I said ‘this
all just makes sense!’ and he said ‘yeah because that’s what you have and this is it – this
is what has been causing all of your symptoms and all of your mental health problems is
Asperger’s Syndrome.’ That was when I was formally diagnosed and it was crazy – changed
my life! Because of that then, I was not referred to the Adult Mental Health Service because
Asperger’s was now my primary diagnosis. It’s what we believe has caused all of my mental
health problems, my Tourette’s, it all comes back to Asperger’s – that’s what I believe
is my formal, primary, most important diagnosis – and because that is not a mental health
problem, going to the Adult Mental Health Service would kind of be like taking a step
back. Now my GP just manages everything. If I need anything, I go back to my GP. They
understand…. for the most part but a lot of the time I don’t really need my GP to monitor
my Asperger’s, I do it myself and it’s just something that I live with. But if anything
ever comes up in the future which I need sorting out when it comes to my Asperger’s, I will
go and see my GP. So there you have it, that was it, that was
how I was diagnosed. I’m really sorry that this wasn’t an exciting story – I warned you
it’s not the most crazy, motivational story. This was literally just how it happened for
me. I know it’s not very typical of a lot of diagnosing processes because I didn’t have
to go through a lot of loops and see lots of different people and get lots of different
tests done. I was literally just blessed to be under the same team for nearly 3 years
and because of that, they had seen every single thing that they had needed to see in that
point. They’d seen my ups, my downs, everything! Because of that they were qualified enough
to make that diagnosis and that was how it came about for me. So let me know your experiences with being
diagnosed in the comments below. Everybody is different and I guarantee that no one’s
story is going to be exactly the same as mine or as yours. But let me know how you were
diagnosed and what your experience was in the comments below. Or if you are pursuing
a diagnosis and you’re trying to find someone who will give you that blessed moment of being
diagnosed then let me know if you are that stage in the comments below as well. So like I said, I am filming a video a day
this week – let’s see how this goes. Hopefully I can pull this off! But if you haven’t already
then you should definitely Subscribe and hit that little bell notification button so that
you get notifications this week of when I upload because it’s going to be very sporadic
and you may not see things coming! But I hope you’ve had a really, really good
day and I will see you tomorrow – bye guys!

100 comments / Add your comment below

  1. Hello. ive been in the mental health system for a while now, with Mixed Anxiety depresive disorder, but am being discharged to the GP and to Cognitive Behavioural therapy for the anxiety side, as the depresssion seems to be fine for the moment. However, people around me are pushing for an ASD diagnosis, based on the fact my Partner has ASD (diagnosed age 8) and we share some similarities, as well as differences, his mother is a T.A at a local-ish high school and deals with 'special needs' all the time so has a ton of experience with it, and because it has always been known through my life that i have SOMETHING but nobody can work out what, exactly. recently (within the past 6 months) ive been online and have taken some tests including an AQ-10, (AQ stands for autism quotient) and i recieved a score of 10/10… i have issues with sudden high pitched or loud sounds (they make me go 'eww', ouch!) that caused a regular issue at my last work place, dealing with an auto-dial system sometimes phoning fax machines *shudder*, cant stand wooly jumpers or sparkles right on my skin, and was lways the odd one out, constantly copying others to try to 'fit in' at school (until after college i became happy with fitting out). ok, im gonna write an essay if i continue, so ive only shared a few examples but have been looked at alot, querying 'what does she have'… so hope to find out. Sons health visitor got a referral form for me, so we shall see!

  2. I have autism and eczema and i am trying to start a youtube channel about these however my story is very different i have a brother with autism since i was 2 or 3 my nan thought i was autistic and already knew i had adhd but didn't want to go through the same thing as she had done with my brother.so my nan took me to the doctor and my doctor thought i was coping my older brother so i wasnt actually diagnosed with autism untill i was in year 6 or when i was around 11 or 12 years old but i did have a diagnosis of adhd since i was 3 so i kind of knew i had autism as i did some off the things my brother did

  3. So, a psychiatrist sent my name into a autism/aspergers specialist to get me analyzed, at 18 as well… and they were SUPPOSED to contact me with a date, but they just never got to me, and I didn’t have the contact information to get to them… plus I wouldn’t be able to do that without help anyway(phone calls make me uncomfortable).
    I kind of came to the conclusion that when the psychiatrist legitimately says “I don’t know what’s wrong to you, I’ll send you to a specialist for aspergers/autism.” that maybe that’s the issue.
    Honestly, I would LOVE to get a genuine diagnosis for SOMETHING just for some peace of mind from the anxiety of thinking that maybe there’s nothing wrong and I’m just thin-skinned.

  4. I'm 26 and had never thought I could have Asperger's or anything until recently when I started learning about how it is often undiagnosed in women and about what symptoms there could be. It made a lot of sense to me because of ways I react to certain things, as well as having dealt with OCD and anxiety. Granted I've never been to a specialist or anything of the sort but I've been wanting to find out for a long time what was "wrong" with me and this seems to fit. I want to know for sure if I have it or not but I'm afraid to tell anyone and also I don't think I've even convinced myself. At first I felt a sense of relief that I had figured out what was causing things and I was sure I had it, then something would make me feel certain I couldn't have it, and back and forth. I'm afraid of telling someone or of going to a specialist and then having them laugh and tell me of course you don't have it, you're just overthinking things. Either way, I really like your channel and really enjoy your videos. Thanks! 🙂

  5. I'm 21-Years-Old and I'm on the very mild part of the spectrum as an Aspie. I was always a bit unusual as a kid, have repetitive behavior and get extremely anxious easily but I often passed it off as for a very long time I wouldn't accept it despite knowing deep down. I have my license, a job, I graduated high school and did a few courses afterwards, I felt 'normal'. I felt if I was an Aspie people would just label me and think I wasn't capable and could only live a limited life but I have had my own personal struggles as well. There's so many different variations of ASD and particularly with girls I'm told it can be difficult to diagnose.

  6. Hey i love your Videos. I met a woman in a gamma school during a practicum and she turned out to be a psychiatrist. As we talked she stopped in the middle of the talk we came to the subject of autism. I told her I was interested in psychology and that I read an article about autism and found that it reflected what I have been going through. Then she looked at me and said: "I think you are autistic. You show a lot of signs and from what you have told me it is fairly much possible."
    At the moment I am thinking of whether or not I should take a test and where I can take a test. Can somebody help me?

  7. right now I'm trying to get a diagnosis…I am 27 years old and been diagnosed with 7 different diagnoses for the past 10 years (PTSD, MDD, Bipolar 2, Sociel anxiaty, dystimia, ADHD, BPD) I've come across your videos recently after receiving yet another diagnosis (BPD) and it made so much sense to me, I started reading about it and listening to more women and their experiences and felt like they were telling me my own life story, I was mind blown by this and how much I identified with everything I heard and read and had no idea that this is an issue and that girls and women are often under/misdiagnosed, I can't thank you enough for your videos and I really hope that I'll be able to find a place that will diagnose me proparly and proffesionly, I live in Israel.

  8. Early college, late high school I realized I had some issues with some of the ways that I do testing, and have failed my ACT twice in a row only to get on freshman probation for about a year and I HATED those classes, I don't think ANYBODY should take them if they have a hard time with reading like I do. Reading has always been a struggle for me, and now I'm almost done with college. In the mean time, I've been seeking out some appointments, I had just got done with a test today.

    I HATED how in the first appointment they kept asking me weird questions which I felt like I didn't want to answer. It made me nervous and somehow maybe I was too tired for this, because they are both early tests, and I am not really a morning person..
    The second appointment was mostly puzzles and verbal things, which I felt like I didn't want to do most of them, especially felt more hands-on. The questionares on papers are just as hard though too…

    I will be getting results in about a couple weeks, one week after graduation.
    I have noticed having trouble with math when it comes to handling cash and not remembering what they gave me… it makes me feel so stupid at times…
    I felt like being a cashier was WAY too much for me to handle as it feels too much of a direct job, I struggle with small talk, don't know what to say, or say weird things sometimes… like how I was thinking about something that related to something in my mind… but nobody would get it because I forget that they aren't thinking the same way ^^;

    Also, I tried a couple anti-depressants, but none of them worked well… I hate that feeling of not feeling like myself, and that's exactly what they made me feel like… so irritating… some doctor I saw at college diagnosed me with depression and anxiety, both mild forms…

    I remember last semester feeling extreme anxiety because of all the responsibilities I got during the first week of classes and couldn't remember them all, and I write down schedules and stuff like that constantly, if I don't I can often fall behind.

  9. Hello and thank you for the videos. I think I might have Asperger's but I've never been diagnosed with anything else because I never really go to anyone to try and get help. I've talked to my parents who thought I might have depression but I never had the guts to go see anyone. I'd really like to know why I feel the way I feel though. I've been doing some research and have been relating so much to what I'm reading that I could cry. Do you think Asperger's would be more likely to be ruled out if I don't have a history of misdiagnosis. I've never been under a team of doctor's observation. I mentioned to a friend once that I thought I might have it, but was quickly dismissed. Please, I just want answers.

  10. Thank you for this video and the one on the difference between women and men with the disorder. While I am aware of the male pattern, the female pattern had completely eluded me. In fact your description of female ability to copy and act socially within the disorder would have thrown me off of Asperger's altogether. Watching your behavior in your video, Asperger's would have never come to mind. I guess after 50 years of working in psychology, I have some more homework to do. One of my personal heroes has Asperger's.

    Thanks again,

    Dr. G

  11. I’m on the Autism spectrum too. I was initially diagnosed with severe autism, severe mental retardation, and speech delay. I didn’t really know about my diagnosis until I was almost 13. Then, when I was 19, I had another psychological evaluation done and I was officially diagnosed with PDD-NOS(Pervasive Developmental Disorder Not-otherwise specified). I experienced panic attacks as a child ( especially at family gatherings), I was bullied a lot in school ( even by certain teachers) and especially in high school and early undergrad, My self-esteem was really low. You’re awesome!😊

  12. When I switched schools, I got sick for a few days and then I was super anxious about going back to the point of making myself sick again. Then that repeated. Again, and again. Until I barely made it there at all. And that's around the time mom took me to get diagnosed with asbergers. Apparently I had a ton of signs as a kid that noone noticed. The school thing might have turned out a lot better if I didn't have to do it like 3 times. Slowly getting worse each time with schools that were further and further away.

  13. your story doesn't have to be interesting to help others. when i was 10 i got diagnosed with ADHD and was thrown on several different meds over 2 years and finally, after them making me a zombie, i stopped taking them. at 20, and 300 miles away at college, i started to spiral downward mentally. the doctors there only made it worse by giving me every medicine they could think of because they had no clue what was wrong with me. i came home that summer and my parents, after calling over a dozen places that said they were not taking patients, found a psychologist. fortunately for us she specialized in autism. we took tests and answered hundreds of questions and now, 5 1/2 years later have 3 diagnoses and have been 1000x better. I have anxiety, ADHD, and Asperger's. I had almost know knowledge of Asperger's and had to learn so much. i am fortunate that i can manage without medication. my whole life i was displaying signs, but in the 90's autism wasn't really a thing, so my parents just thought i was different. also, i'm the oldest so they had nobody to compare me to. and i did finish college with a 3.0 which was fantastic.
    I feel so much better finding your channel because I thought I was the only one who experienced the things i do, and i feel like you have similar experiences. luckily i have never had any issues with tourette's and my doctor says the OCD tendencies are just a way to cope with my triad of issues. keep posting videos. you're helping so many people.

  14. I'm gonna see a psychologist soon for my panic attacks how is an appointment like I'm really scared and I wanna back out

  15. Your channel is so amazingly helpful. It makes me a bit emotional. I am currently thinking of seeking a diagnoses of aspergers because it all matches up and makes sense when I view myself and my life in the context of me being on the spectrum.

    It's scary and tiring so it's so nice to have some info and support out there.

  16. I was diagnosed with Aspergers 2 years ago now. I’m only really seeking to look into my diagnosis, which is how I’ve stumbled upon your channel and I’m so glad I did! I was just curious, how can doctors help with your Aspergers? As I was told, that I just have to live with it, and there’s nothing drs or counsellors can do, and I thought if there is help I can get, that could be amazing x

  17. Also, I was diagnosed after being diagnosed a year prior with depression and social anxiety. I felt there was something more, and thought I had ADD, so I pressed (well actually my NT best friend pressed further) further at the drs and they referred me to the Neurodevelopmental Team, I was on the waiting list for 6 months. I went into an assessment for a diagnosis for ADD which turned into an Aspergers assessment part way through when she thought it was clear I have Aspergers and dyspraxia. It was the first time I’d felt a professional had listened to me and actually cared.

  18. I hate to ask such a stupid question, but at one point you made a video of why girls usually get diagnosed later than boys. I found it very useful, but I can't find it again. Would you mind telling me the name of it?

  19. I wasn't diagnosed until I was 28. I always knew I was different, but my parents never seemed to catch on well enough to think maybe I had a cognitive disorder. One day I was talking to someone who asked me if I had Asperger's Syndrome. I had no idea what it was, and she told me. She said it was like "an antisocial disorder". I immediately thought, "I'm not antisocial. Get me on a certain topic and I'll talk your ears off." So, I started researching it obsessively, bought a Tony Attwood book, and I was blown away at how much sense of my life it made. And yeah, I learned that yammering on about a special interest topic is a trait of Asperger's as well as the tendency to obsessively research things. So, I decided to see a psychotherapist, and I told him what I thought I had. Within the hour he told me, "you're the first person I've talked to who got their own diagnosis correct." The official diagnosis was both depressing and affirming. I couldn't believe there was a name for what I'd been going through all my life.

  20. So I'm getting tested for autism in a couple of weeks . All my doctors and counsellers think i have it. The thing I'm worried about is the fact that anxiety and depression really really affects my life. And if I'm diagnosed with autism if they will just work with me soley on that and kind of ignore the other things. It sounds silly but it's just that I've been waiting for help for depression for almost 3 years and if they then see that it's tied in with autism they might not treat it in the same way ? If that makes sense .

  21. I was diagnosed when I was 8 so I don't really remember a lot about it. My symptoms weren't that obvious, but my brother is very autistic and there were some similarities. After that I immediately had an IQ test, on which I scored poorly because the questions were stupid and either way too easy or way too difficult. According to my mom, I actually ran away and we had to continue the test another time. I've always felt quite normal, like, compared to my brother, but then there was high school and here I am watching videos about autism. It's quite frustrating how few tips there are on the internet for people with autism on things like social interaction. It's like it's only hard for the people around us and we ourselves can't change a thing about our behavior. Sorry for the annoying long comment btw

  22. I did the tests to see if I have aspergers, but they said I had too much anxiety, which would interfere with an accurate diagnosis. I, along with some of my family and teachers, think I have it

  23. That's not how you diagnose someone with Asperger's/ASD. You have to go through the DSM:

    Autism Spectrum Disorder 299.00 (F84.0)
    Diagnostic Criteria

    A. Persistent deficits in social communication and social interaction across multiple contexts, as manifested by the following, currently or by history (examples are illustrative, not exhaustive, see text):

    1. Deficits in social-emotional reciprocity, ranging, for example, from abnormal social approach and failure of normal back-and-forth conversation; to reduced sharing of interests, emotions, or affect; to failure to initiate or respond to social interactions.

    2. Deficits in nonverbal communicative behaviors used for social interaction, ranging, for example, from poorly integrated verbal and nonverbal communication; to abnormalities in eye contact and body language or deficits in understanding and use of gestures; to a total lack of facial expressions and nonverbal communication.

    3. Deficits in developing, maintaining, and understanding relationships, ranging, for example, from difficulties adjusting behavior to suit various social contexts; to difficulties in sharing imaginative play or in making friends; to absence of interest in peers.

    Specify current severity:

    Severity is based on social communication impairments and restricted repetitive patterns of behavior (see Table 2).

    B. Restricted, repetitive patterns of behavior, interests, or activities, as manifested by at least two of the following, currently or by history (examples are illustrative, not exhaustive; see text):

    1. Stereotyped or repetitive motor movements, use of objects, or speech (e.g., simple motor stereotypies, lining up toys or flipping objects, echolalia, idiosyncratic phrases).

    2. Insistence on sameness, inflexible adherence to routines, or ritualized patterns or verbal nonverbal behavior (e.g., extreme distress at small changes, difficulties with transitions, rigid thinking patterns, greeting rituals, need to take same route or eat food every day).

    3. Highly restricted, fixated interests that are abnormal in intensity or focus (e.g, strong attachment to or preoccupation with unusual objects, excessively circumscribed or perseverative interest).

    4. Hyper- or hyporeactivity to sensory input or unusual interests in sensory aspects of the environment (e.g., apparent indifference to pain/temperature, adverse response to specific sounds or textures, excessive smelling or touching of objects, visual fascination with lights or movement).

    Specify current severity:

    Severity is based on social communication impairments and restricted, repetitive patterns of behavior (see Table 2).

    C. Symptoms must be present in the early developmental period (but may not become fully manifest until social demands exceed limited capacities, or may be masked by learned strategies in later life).

    D. Symptoms cause clinically significant impairment in social, occupational, or other important areas of current functioning.

    E. These disturbances are not better explained by intellectual disability (intellectual developmental disorder) or global developmental delay. Intellectual disability and autism spectrum disorder frequently co-occur; to make comorbid diagnoses of autism spectrum disorder and intellectual disability, social communication should be below that expected for general developmental level.

  24. I'm wondering though, for anyone who cares, am I the only female that was diagnosed with autism at a very young age?

  25. I was not diagnosed until mid high school. I did not accept it and stayed in denial for years because I did not want a label telling people that I was even more different. However, a few years ago a good friend gave me some advice to research the topic, and in doing so I found that it described me to a T. Now that I have learned to accept myself and be proud of it, areas of my life have much improved: https://www.youtube.com/watch?v=D8cYqQU-cvs&t=169s

  26. I was 8 when I was diagnosed. My whole family was going to therapy and the therapist and my mom noticed some stuff. I’m going to post it later today but, Happy Autism Awareness Month🎉

  27. I got brushed under the carpet for a long time until the age of 18. My university put me in for an assessment and they told me I had a mixture of 3 things and one of them is Autism.

  28. I'm so proud of u girl! My 11yr old son has Autism to. I spoil him rotten! I know yr parents must be proud of u to.God Bless!

  29. I am struggling to get a diagnosis, I suspect Aspergers and my eldest child already had a diagnosis of Aspergers but the assessor seemed to think it was very significant that I could make eye contact. I pointed out that I am female!

  30. I am going in for assessment this coming Wednesday, and I'm so thankful for your channel, and this video. I related to so many things you mentioned and it gave me a nice list to bring with me!

  31. @ invisible I. Another great video, thanks for making it. It's interesting you've mentioned a couple of times about having other conditions such as depression and borderline personality disorder, I've been diagnosed with them. As I said in my last comment I suspect I have ASD and I'm going to mention it to the psychologist I'm seeing.

  32. I have just got diagnosed with ASD on the high functioning end where aspergers used to be. I'm 21 years old and have suspected I might have autism since my brother got diagnosed when we were about 14. It is weird feeling this sense of validation and not knowing what to do now I have my diagosis.

  33. I love the heart pillow. I have one that looks just like it. Mine is super-soft, and I put it on my super-soft papasan chair cushion with my super-soft flower pillow. It's heavenly to sink into all that softness.

  34. I'm kind of scared of getting a diagnosis next month .. you said that it becomes the sole diagnosis so they just stop treating my depression and anxiety after knowing autism was causing it ?

  35. Man, I really wish my diagnosis was handled half as well by the person that diagnosed me.

    She just dropped it on me, gave me a letter complaining about how I wore long sleeves in summer (it had been explained to her that I had a medical diagnosis of acute photosensitivity) and a url to a forum for loved ones of people with asperger's that turned out to be full of people calling us abusive, unfeeling, sociopathic narcissists. I cried and cried and just knew that all of the bullying I'd put up with was deserved. That bitch had no business giving me the diagnosis that way, especially when she knew about my severe clinical depression.

    It's been almost seven years now, and only now am I able to so much as research it without wanting to becoming so upset that I cannot function for weeks afterward. I was so upset for so long, and my mom was the only one to accept the diagnosis and tell me that the woman was wrong. No one else in my family has even listened, or cared, in all this time. I have so much trouble understanding speech, and I'm manipulated so easily because I don't know someone is even asking me to do something until after they've left, and I can't not do what they want, or I get bullied. And they know it and keep doing it.

    I found some videos on YT and shared them with them all, and while it's not gotten me compassion, it's at least shoved how cruel they've been to me in their faces.

    I've cut a lot of people out of my life, and it looks like it's only gonna be me and my mom.

  36. I'm gonna get tested for autism next Friday! I hope they find something.. Otherwise, I'll never find out why I'm suffering from sensitive hearing or why I have other problems like social struggles, lack of eye contact, my lack of common sense, my strict and strong interests, etc.. My sensitive hearing is the biggest problem. I really NEED to find out why I am cursed with it..

  37. I just got diagnosed yesterday. In a similar situation to you where it was quite swift, only took a 1 1/2 hour assessment with someone to confirm it because i was with the children's mental health services; they already had tonnes of information about me and my characteristics in therapy sessions so it was just a case of confirming that with someone able to diagnose ASD. Im now in the process of an ADHD diagnosis because they noticed those symptoms in the assessment(and my notes), then they will write an actual report to give my college.

  38. I just now found your channel and I love it a lot, I was diagnosed after I graduated high school in may 2017 and it was so foreign to me. Little to none of my friends were "comfortable" with the diagnosis because they said that "I was normal." My whole life I have learned how to fake my social skills and although this was a good thing at the time, it really hurt me as well because I wasn't diagnosed when I was younger. Before I was diagnosed with ASD I was diagnosed with GAD, OCD, and depression but I just knew that something else was going on somehow.
    I am so glad that I came across your channel, you make me more comfortable with my diagnosis xx

  39. When I discovered Tony Attwood's presentations on youtube, I knew that this explained everything that made me feel so 'different'. He immediately made me feel safe because he understood me somehow. He really is incredible! And I'm struggling to get a diagnosis. I keep second guessing myself (thanks, anxiety) and its hard to control all these emotions. I'm scared I won't be taken seriously.

  40. I started on my journey to a diagnosis when I was 14( a few months before my 15th birthday) and it took a year and a half to be diagnosed, however I had some of the signs during early childhood but they got missed and then more signs flagged up when I got to high school. At this point I was in year 10 and I was doing work experience and they told my school that there were concerns about my communication and my school called in an educational psychologist to have a meeting with me and do some activities and then I got observed in the classroom. Then the educational psychologist got in contact with my parents and made a referral to another specialist at a children’s hospital, then I had to go for an assessment with a team of psychologists and I got my official diagnosis just after I turned 16

  41. I originally thought I had Aspergers, so my Doctor referred me, and the lady I saw basically inferred that it was “close but no cigar”, its more likely ADD. Got referred for ADD or ADHD as it is now known and got a diagnosis for that. After about 2 years there were some symptoms that I couldn’t attribute to ADHD. In the meantime our NHS service had created an Adult Autism and ADHD service who I see to monitor ADHD medications and asked if I could be referred for Aspergers. They said yes and agreed that I did have the Autistic traits to garner a diagnosis. There is a huge overlap in my mind between ADHD and Autism which creates a conundrum of symptoms and I think that was why it took me nearly half a century to believe myself that I needed the clarification.

  42. I’ve gone back and forth. When I was about 10 or 11, I was diagnosed as autistic, and then I had a period where I wasn’t seeing a therapist until I was 17, when the therapist said I wasn’t. I wasn’t really in therapy again until I was married, and I’ve had therapists go back and forth between “No, you’re not,” “Yes, you are,” and “Well, does it really matter at this point?”

  43. Not autism disorder, but ADHD and OCD in combo with PTSD

    The PTSD was very apparent but ADHD being one of the most common disorders that girls are underdiagnosed. I was told I have bipolar disorder type 1 and for a year I was being treated with BP meds that made me literally pass out. I would fall asleep in at the most inappropriate times and places and my doctor kept telling me the side effects will go away but never did. Finally I spoke to my aunt and she told me about how everyone in our direct family was diagnosed with ADHD & gave me a very specific doctors office to go to and from there I was finally properly diagnosed and while I still have very difficult days I'm thriving more than i thought was ever possible

  44. What is the benefit of being officially diagnosed with aspergers? Like if you are 99.9% you have it. You did testing as a kid, but were unable to finish the official test and that doctor said that you basically have it. So you are pretty sure, but do not have an "offical" diagnosis, are there benefits to being "officially" diagnosed?

  45. I’m an Aspie too! I was diagnosed when I was five. I had and still have a specific order in which I would do tasks, as well as social awkwardness (99.99% of my friendships are facilitated by the other person), high sensitivity to sudden loud noises, and the occasional inevitable crying fit if something happens and I am not prepared to deal with it.
    My friends know I have Asperger’s, as I occasionally remind them so they understand if something happens and I suddenly start crying, or when I suddenly start talking about roller coasters (my special interest). The main reason I tell them is that they wouldn’t notice I have it if I didn’t tell them, as like my fellow female Aspies, my symptoms are mostly hidden.
    I love videos like this, as I enjoy hearing fellow Aspies’ unique stories! Thank you for sharing yours! 😁

  46. I was first diagnosed when I was 11.
    Before that was put in a school with emotionally disturbed boys it was a miserable three years of my life. I finally was put in mainstream school at the age of six it took a few months but I caught up with mainstream education same as the other children. I’m now married to my long time best friend from America and currently going to top up my degree in games design to eventually build my way into a job into the games industry. I have done voluntary work in QA in games. So guess that’s not bad?

  47. You say you didn’t have to jump through a lot of hoops (har, har – nice job “circling” back to the hoop earrings, intentional or not) to get your diagnosis, but from my point of view you did the same blind hoop jumping a lot of women have to do to get to an ADHD and/or ASD diagnosis – the three-ring circus of mental health misdiagnosis! Thank you so much for sharing your story!

  48. I’m in the process of getting diagnosed right now.
    I was talking to a few friends who were diagnosed and I was like, “but I do that too.” Or “I’m like that too.” “Isn’t that normal?”
    So next day I went in to see my GP and she said she has been suspecting I have Asperger’s. So I’m waiting to get evaluated right now. I’m currently 23 years old…

  49. I was diagnosed in yr 7 (13 years old) when I had a teacher stalk me around the school with a clipboard and pen noting……. telling peers to fuck off…….number 1 in subjects i liked while very bad at subjects i hated……….intense interest in assault rifles and combat tactics……..could explain nuclear chemistry……..could explain Albert Einstein's E=MC squared…….. sat alone in the playground while thinking deeply…… etc etc etc…….

  50. Because I'm a Baby Boomer, Aspergers and Autism Spectrum Disorder was not recognized and included in the DSM until I was well into middle age. By that point, none of the professionals wanted to talk to us middle age and senior citizens on The Spectrum. Trying to get a diagnosis, at this point, is prohibitively expensive. I'm self-diagnosed, especially after taking the Autism Quiz and getting a score of 45 out of 50. At my age, what can professionals do?

  51. I’m in the process of pursuing a dx. I just figured out a week ago from a video on female asd traits. I’m 37,(almost 38). My psych/therapist office unfortunately are understaffed and currently don’t have anyone doing assessments. So I googled and found an organization for info and help in ohio(u.s.) and they gave me a few options. I called today and have an apt on Friday. But I’m not sure with whom or about what exactly. It’s a great start I think.😄

  52. Hello! I just discovered your channel because an obsessive episode that I just had. I am 22 and I am like a ball of mental problems too. I've been diagnosed with depression, bipolar disorder and "there is nothing wrong with you" by different psichologists. Now I see that MAYBE there is another reason of that problems, because I feel so related with your videos. Now I am going to a new psichologist and she didn't diagnosed me yet because I went 3 times. What I should do? I am terrified about the idea of another bad diagnosis…

  53. My name is Evie and I'm from the US and I need help with finding a doctor that would be able to diagnosis me with high functioning autism even though I'm on disability and I don't have any insurance???

  54. I was diagnosed with Asperger's by an unqualified therapist last year. I'm now in the process of making a BACP complaint about him: I'm not on the spectrum.

  55. This is almost exactly the same way I was diagnosed! I went in for anxiety and depression and found out I was autistic. I read the book by Tony Attwood. Actually, after it was suggested that it was something I might have, I went across the street to a library and took out every book related to autism, which was around twenty books.

  56. I find it a lie that autism in females are different from males, I think it was use to make it more difficult for doctors to find out if a woman was diagnosed, it depends on the persons level and what they experience besides I know a lot of females with autism that have been violent at some points and had a bit of unsocialized issues etc, I was actually one of them kind of!

  57. I think I might be on the spectrum. I haven’t been to a psychiatrist since I was a teenager and the thought of trying find one sounds terrible. They never really could figure me out and I didn’t really let them at the time. I was diagnosed with a general anxiety disorder but I’ve always known there more to it than that. It’s not like I want this but I want to know what makes me so different and why I can’t do a lot of normal things. The older I get and the fact I’m a parent I feel like I need help. I have a hard time explaining myself and projecting my feeling so I can’t get across how I feel and get misunderstood. It’s all so overwhelming

  58. I can't believe you git diagnosed so easily. Like someone saw symptoms in you and actually told you about it. Then all you needed was a few more appointments. I'm seeing the mental health team as well but I don't feel like they're helping me. My mask is on so tight I can sometimes tell them things but it's not like they can understand because I'm so good at acting normal and they don't feel what I feel. I keep thinking I might be autistic but diagnosis seems too scary. It's hard for me to show symptoms of anything I have so many coping mechanisms that mask any problems I have. Sometimes I rarely see them myself so never mind other people seeing them.

  59. Hi katy My name is Avi I was also diagnosed with asperger syndrome. When i as a kid i had sensory issues to noise and space and i was wild and violent when i was a kid. Because i got the services that i needed as successful at school and i got my own apartment after i graduated college and i now work and hold down a job, I grew out of my sensory issues and i am working on accepting who i am and i am working on letting go of my anger and resentment about my past and now realiize that it is fine to be me and i am now in a good place with a good community and a lot of friends that like me for me.

  60. I just recently stumbled upon your channel…..I was starting to believe I might be on the Spectrum, and I watching your channel has been a total 'AHA" moment for me! Like, so many things you say, I think, well…that's me too… I believe one of your videos was in my suggested list while watching a Fathering Autism video, which I watch a lot of. I had the light bulb moment one night while out with my hubby and said about one of ticks being similar to Abigail's. And after watching your videos, it is making me think that maybe I am not crazy, maybe I am not just reaching, that maybe this is it…..cause other things fit….but didn't feel right, left missing pieces…..but Autism diagnosis, for me, seems to make so much sense. Every online test I could find that seems reliable that I have taken tells me I that go seek a professional….and your videos are helping me see that its ok, even as a grown adult to go get help for it…that it is not too late. sorry for the long comment, but thank you for your videos, they are making an actual impact!!! You an inspiration to me!!

  61. I'm 40 and have finally been diagnosed with Aspbergers and ADHD. I have crashed and burned since I was 16, and been fighting for my right to comprehend myself. I'm so happy for you to get the diagnosis when you're still young. I'm happy to get it at 40. There's still a lot of things we can do, and we aren't "wrong". Much love to you.

  62. Wow! You've had quite the journey. I just got diagnosed not too long ago. Originally, I was diagnosed with ADD.

  63. When I was in primary school the teachers told my parents that they thought I was autistic, but they didn't tell me. When I was in secondary school, a teacher told my mother that she thought I was autistic but he didn't tell me. Also when Home Treatment visited me, they told my mum that they thought I was autistic but they didn't tell me.

    I got diagnosed at 24 as a psychiatrist sent of a letter. My parents didn't want to diagnose me as a child as they didn't want to label me.

    It's hard being autistic and an adult at the same time, as my autism restricts the types of jobs I'm able to do. I don't qualify for disability according to the government, but yet I'm not normal enough to be able to get a full time job. My future is sad.

  64. I'm 38 and I'm going through a diagnosis for aspergers. Struggled for soo soo soo long with my mental health and it all makes sense. Being a guy I think we bottle stuff up more but my new partner has been really supportive and spotted the symptoms in me quite early into our relationship and has spurred me on to confront this. A diagnosis is really really important as it'll mean I have a reason why I'm like I am and perhaps I'll blame myself less for not being able to do certain things. Love your videos. They've helped a lot. Also renewing my pip too… first one I had to appeal even though I broke down in my first assessment and told her about trying to commit suicide etc she awarded me 0 points for everything. It wasnt until the appeal process that I was awarded standard for both living and motability. The stress it caused has made me worse and now that it's being renewed and I'm having to repeat the process again I can feel the anxiety building up again.

  65. i havent been diagnosed but im going to ask about it when i get health ins startin jan 1st. ive watched a lot of videos and i really dont think adhd is all i have going on. the meds help a lot but not entirely.

  66. In my city of Birmingham there’s 100 people applying for every job. There’s no jobs. And because of the housing crisis people are living in HMOs. Houses of multiple occupancy. Rent is high because the demand for housing far exceeds the supply.

    Because I’m a writer, I can create content. There’s a long term unemployment problem.

  67. Yes they will!!! I've done exactly the same thing!!! One got launched across the room last night while I was in bed 🤣🤣🤣

  68. I’m such a hypochondriac that I know way too much about mental health. For the record, my parents are trying to get me screened for ASD, but I’ve been researching it loads and I now know quite a bit about it.

    I’m also fairly certain my friend has BPD because her personality seems different quickly and usually in different circumstances. One on one, she’s kind, funny, supportive. In a group, she’s moody, sarcastic and passive aggressive. In class, she’s quiet and shy. With large groups of friends, she’s snappy and antisocial. I’m kinda worried honestly cause one moment she’s begging to leave school so she can see her mum the next she’s saying she hates her mum and gives up on family and on having kids. It’s so hard to put up with, even if it isn’t actually BPD, because I never know how to act with her. Usually I know what sort of things to say, what’s likely gonna be talked about, how people will be getting in with each other (because I try to keep up socially by mimicking and masking and observing) but with this friend, it’s so complicated!

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