AMANDA MCLAUGHLIN: It’s not fun to be aroused
all the time. Would you want to have a raging boner 24/7? I don’t think so. It’s just
non-stop. AMANDA MCLAUGHLIN: PGAD is a Persistent Genital
Arousal Disorder. Feels like you are about to orgasm and then it never goes away. So,
its sharp pains all the way through your legs, all the way through your pelvic. It’s just
non-stop. COMM: 23-year-old Amanda was diagnosed with
Persistent Genital Arousal Disorder or PGAD in 2013. For years neither she nor her mother,
Victoria, knew what was wrong with her. AMANDA MCLAUGHLIN: When I was like 13-14,
is when I first started noticing there is something wrong. No one ever believed me.
I kept saying, like, ‘I need to have sex. I need to orgasm.’ Like, when I was 15-18
stage, I, like, I masturbated way more than a normal teenager would. VICTORIA ENRIQUEZ: I first noticed that something
was wrong with Amanda when she first became sexually active. She was having sex a lot.
I didn’t know what it was. My whole family thought that she was just a whore. AMANDA MCLAUGHLIN: Everyone thought that it
was just, like, a sex addiction. If I could go the rest of my life without having orgasm,
I would. That’s fine. VICTORIA ENRIQUEZ: Honestly, back then I was
frustrated because I started to think that she was just a hypochondriac. I doubted her
completely. I still feel guilty. Your child is telling you that they are in
pain. And the doctor is telling you that basically it is nothing. And I believed the doctor over
my daughter. AMANDA MCLAUGHLIN: Some days I do okay and
then some days, I don’t want to be around anyone. I don’t want anyone to look at me.
I don’t usually leave my house as it is. But, I mean, I don’t even want to be on
social media. I don’t want to do anything. VICTORIA ENRIQUEZ: It was a huge relief when
we found out that it was PGAD because then there was something. There was validation
that she is not lying, that she is not making all this stuff up, that she is not a whore,
that she is not a sex addict. COMM: At home, Amanda now has the support
of her fiancé JoJo. The pair met a year ago and have been inseparable ever since. AMANDA MCLAUGHLIN: He takes care of me on
days that I can’t move, on days that I am like having full on panic attacks because of how much pain I am in. Relationships are very hard to keep and with this problem. He never
once has judged me. He never made me feel bad about not working or anything like that.
When they say love at first sight, it really was. JOJO FELLER: When she first told me, I didn’t
know how to feel about it. But I liked her. So, I was prepared to, basically, jump in.
The more I could learn, the more I can help her. I will go with her to every appointment,
injections. I will help her so she gets anything she needs. AMANDA MCLAUGHLIN: It affects our sex life
quite tremendously. Actually, you would think that you would just have sex and it would
go away. It doesn’t. And some times I will literally be crying, begging him to just have
sex with me. Just to relieve some of the pressure that I have down there. And, so when you are
begging your man for sex, it’s kind of difficult. Because then it makes you feel like crap,
like, ‘Oh, why don’t you want me?’ Even though you know that’s not what it is. JOJO FELLER: I told her. I was like, ‘I
don’t want sex to feel like a chore. I want it to be something special,’ which is why,
we kind of cut back on it. AMANDA MCLAUGHLIN: I sit on an ice pack. Sometimes
ice doesn’t help though. So then I have to go to the heating pad. And then sometimes
the heating pad doesn’t help. So I have to go back to ice. I have ice inserts that
I can stick inside me to help with swelling. COMM: Dr Gupta at Michigan University is treating
Amanda, who now takes 30 different medications to try and ease her pain. DR PRIYANKA GUPTA: Because it’s such a rare
diagnosis and there’s been so little research, we don’t know exactly what causes it. We
suspect that it’s multi-factorial from you know, several different issues. Amanda and
I have talked some about the fact that I don’t have, kind of a quick cure to this. But that
we are going to be trying a few different therapies. AMANDA MCLAUGHLIN: I just wish the name was
different. Because the arousal disorder part makes it sound, like, you are aroused. Like,
‘Oh, yeah. That’s awesome.’ It’s really not fun at all. DR PRIYANKA GUPTA: I don’t know if we have
a cure yet. But I definitely think that we have not exhausted our treatment options.
I am very hopeful that we can get Amanda better and get her functioning better. AMANDA MCLAUGHLIN: My whole life would be
different if I didn’t have this problem. If I wasn’t in pain all the time: I might
be able to work, I might be able to drive. I want kids in the future. My whole life would
be different. I know I would be happier.