What Sick Looks Like: Invisible Illness

What Sick Looks Like: Invisible Illness

i’m carolinethe leaves andI have acollation of your osteoarthritis lupusrheumatoid arthritisendometriosis andHashimoto’s Clark Muggeridge systemiclupusI’ve hadboth shouldersyour place bothknees replacedi had this excruciatingpain in my shoulderI couldn’t use myhandsfor about a monththey had swollento massive size the migraines are soexcruciatingly painful that youcan youknow later on in the day you can’t do yourhomework I havehad people say wellyou don’t look sickthat’sonethat you know it’s kind oflikeyeah I saythat it’s a lot morecomplicated than it looksI really really wish there was a way toknock some compassion for peopleandthey see me as like thisactive personwho loves to danceI hadthis personality and very goodgraces soi usedlooking normal to myadvantagebut i really try to keep thatstrong front so wheni’m outside andI’m not a walk or runit looks likeeverything’s fineit makes youa stronger person it’sdefinitely given me somepatientstaughtme morepatientIhad to learn how tohave compassion for myselfI’m Carolinemiliosand I’m not my owni am notlupuslupusI’m not mychroniclanguage IamNOT myinvisible illnessi amNOT my illness

14 comments / Add your comment below

  1. I have shown my dad videos on this channle to try to make him understand more of why i act the way i do sometimes. I want to thankyou for helping me because you always put the things i can't describe to him in words he can understand. THANKYOU SO MUCH.

  2. I'm in the same boat. Arthritis, chronic migraines, severe depression, and chronic exhaustion. All because of Crohn's.
    Whenever I bring any of it up, there are three answers I get every time; "me too", "you're just trying to get attention", and the eternal "you look just fine so stop lying."

  3. Me too. I have fibromyalgia, Psoriatic Arthritis, plaque psoriasis, Addisons Disease and currently a parotid tumour.
    Sick of people telling – ‘you look so well’, you must be better now, or just expecting me to do way too much.

  4. I have Neurofibromatosis, (possible) POTS, undiagnosed joint pain, dyslexia (not illness but disability) I’m not these but it’s really hard with dyslexia as it’s so hard to concentrate and do simple cognitive tasks (simple math and map reading) but I have found strengths 🙂

  5. I’m 13 and Im wheelchair bound and I haven’t been to school or the mall or anything in almost 2 years i have P.O.T.S (Postural orthostatic tachycardia syndrome)
    E.D.S (Ehlers-Danlos syndrome)
    C.R.P.S (Chronic regional pain syndrome)

  6. I get "but you don't look sick" ALL the time! People don't get what it is like to have an invisible disability until it happens to them or to someone they are very close to. THANK you for posting this!

  7. People act like I should feel complimented when they make this idiotic comment. They don't get it until &/or unless they GET something

  8. Awesome video.Thanks for putting the truth about invisible illnesses out there. I sffer from disabilities that are invisable.
    It is so painful when you get no empathy. If I said I had Cancer tons of support would be available.

  9. Ask them "If you had a headache, could you prove it?" I think it helps them to understand a little because with these illnesses, you feel pain, but no one can see it unless it's in bloodwork, MRI, or some other test. It's difficult being young and having these medical problems – everyone thinks you're just lazy.

  10. I have :
    High functioning autism
    Lots of allergies
    And a lot of undiagnosed conditions. Sometimes I use crutches or a wheelchair and many people think nothing's wrong with me if i dont use them. Also I'm 14 and still happy with my life ?

  11. Invisible Illness

    Fibromyalgia, Chronic Fatigue Syndrome
    Lupus, Sarcoidosis,
    Hepatitis, Diabetes
    Multiple Sclerosis.

    Crohn's Disease, Thyroid Disease
    Coeliac as well,
    Rheumatoid Arthritis
    All causing people hell.

    Allergies, Food in tolerance
    Depression, IBS,
    Chronic Myofascial Pain
    Invisible illness? Yes.

    Clinical Depression,
    UC, PNH
    I thought it best to mention.

    Don't assume they're lazy
    Or faking any pain,
    These invisible illnesses
    Do drive folks insane.

    Lyme Disease, Infertility
    Heart conditions too,
    Headaches and Migraines
    These are just a few.

    So have a heart and listen
    When telling you how they feel,
    You can't see invisible illnesses
    But believe me! It is real.

    William Mckechnie

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